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September, 2008

June, 2008

March, 2008

December, 2007
includes full stories, videos and pictures on these topics:

  • FAIR confronts NIH Director in online forum on HIV/AIDS favoritism--his answer disappointing for all non-AIDS patients and especially diabetics.

  • FAIR will profile members in need of a kidney to survive in the hopes one of you will come forward and save a life.

  • FAIR's direct press release: immediate action needed to reverse America's organ-donor crisis.

  • American Society of Tranplant Surgeons past-president: "Allow government or insurers to pay US citizens for donating a kidney."

  • Great Britain moving towards adopting Presumed Consent.

  • Who profits from your organs, tissues and cells?
    Should you?

  • In a powerful and biting published opinion editorial, FAIR member and LifeSharers founder, Dave Undis, asks, "why won't the organization in charge of overseeing transplants in the USA take steps to reduce the organ shortage." Why, indeed.

  • Are you waiting for a liver transplant?  Which areas/hospitals are transplanting years sooner than others.

  • Travel with FAIR to the American Diabetes Association Expo and meet dozens of new FAIR members

  • Numerous published instances of HIV/AIDS hyperbole are debunked with our letters to the Directors, Editors, et al.

  • Presidential NIH Research Budget Request Lavishes $$
    on HIV while other diseases bemoan their fate.

  • President Bush vetoes increase in bio-medical research funding, education and job training.

  • we also feature four members of our Board of Directors: Melba Moore, Commissioner of Public Health for St. Louis, Missouri, Leonard Morse, MD, Commissioner of Public Health for Worcester, Massachusetts and a Member of the Board of Directors of the AIDS Project Worcester, Okechukwu N. Ojogho, MD, FACS, Director of the Loma Linda University Medical Center Transplantation Institute and Bill Remak B.Sc.MT, BA PHA who is Chairman of the California Hepatitis C Task Force.

  • FAIR's information popular on the website--19,000 hits per wk

  • FAIR's direct communications with many NIH officers, advisors, those at the National Cancer Institute, Council of Public Representatives, NIH Peer Review Advisory Committee, the Director of the NIH's National Heart, Lung, and Blood Institute, the Director of the NIH's National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) and the newly appointed Executive Director for Management of the NIDDK.

  • FAIR to Macy's on HIV/AIDS favoritism and the MORE Magazine on false statements that all women are at risk for HIV/AIDS.

  • Many articles of good news about HIV that illustrate why it does not still deserver 10 percent of the entire NIH budget.

  • Need a liver biopsy without needle insertion?

  • TOTAL USA HIV/AIDS funding for your state?

  • The HIV/AIDS Clinical Trials Parade Continues. Compare the number of clinical trials for your disease of interest to that for HIV disease.

  • FAIR Joins effort with 600 orgs for overall increase in research funding.

  • FAIR Members' Soapbox Alerts continue, this time on behalf of those with orphan (rare) diseases.

  • Send a Get-Well Card today...for free

  • Our "Focus Diseases of the Month": Autism and Fibromyalgia

September, 2007
includes full stories, videos and pictures on these topics:

  • FAIR begins profiling members in need of a kidney to survive in the hopes one of you will come forward and save a life.

  • We amplify on the various ways that FAIR saves the lives and include a most informative article from the Palm Springs paper

  • FAIR submits video questions for Presidential candidates in their YouTube debate

  • FAIR's CEO communicates with the Board of Directors of those who oversee our organ-donor system and asks that they help reverse our crisis by following the lead of the British Medical Association

  • In another example that our country's present organ-donor policy of "altruism" is not sufficient to reverse our organ-donor crisis, Julie Smith dies

  • If you are killed in an auto accident and qualify medically to be an organ donor, would you like your organs to go to another person in support of organ donation or to a person who has not expressed their support for organ donation? If the former, join our CEO, ABC TV's John Stossel, Nobel Prize Laureate Milton Friedman and thousands of others as a member of LifeSharers

  • Travel with FAIR to American Diabetes Association expos and elsewhere and meet dozens of new FAIR members who signed up every four minutes for dozens of hours of exhibits in Pittsburgh, Los Angeles, Long Beach and Loma Linda, CA

  • In our continuing series on exaggerations in the media...
    --Presidential hopeful Hillary Clinton misspeaks and is accused by the President of the National Black Chamber of Commerce of pandering to blacks
    -- Did you know HIV and prostitutes are affecting the price of your gold
    -- India exaggerations by UNAIDS continue
    -- Two New books accuse UNAIDS of exaggerating HIV statistics to increase donor funding
    -- New York experts say their seniors are having sex so let's spend $1 million on condom education
    -- "HIV high in Washington, DC female inmates." What is "high"?
    -- CDC admits overestimating AIDS cases by thousands
    -- FAIR exposes large Palm Springs AIDS organization's hype

  • HIV/AIDS good news articles..
    -- Potential cure for HIV
    -- Expert's opinion: AIDS no longer a death sentence
    -- HIV patients now also receiving lung transplants
    -- Hospitalization of HIV infants/children down 90 percent
    -- States continue their stunning success against HIV/AIDS
    -- Pregnancy Protective Against HIV Disease Progression

  • In our continuing series profiling FAIR's Board of Directors we bring you our esteemed members Norman Kay, Donald Hillebrand, MD, Ray Hill, Jacqueline Marcel and Phil Berry, MD.

  • 100 CDC employees flying to International AIDS meetings could have been used for drugs to benefit 113,000 infants..

  • FAIR submits opinion editorial to Newsweek Magazine calling for an end to HIV/AIDS favoritism and demands proper respect for non-HIV/AIDS illnesses

  • FAIR's Board of Directors to NIH's new Deputy Director of Office of Portfolio Analysis and Strategic Initiatives: "Redistribute a portion of HIV funding"

  • The Director of the Centers for Disease Control responds to our previously submitted request

  • FAIR Adds Breast Cancer and "Total Cancer Funding" to fact list

  • Lance Armstrong has repeatedly stated the following: research funding for cancer is not fair, cancer is this country's number one killer, cancer kills 600,000 annually and that funding for cancer has been cut. Are those facts correct?

  • Abbott Labs sues one of America's most strident HIV/AIDS advocacy groups

  • What is the total HIV/AIDS funding for your state?

  • FAIR Joins in successful Congressional effort to increase bio-medical research funding

  • The HIV/AIDS Clinical Trials Parade Continues. Compare the number of clinical trials for your disease of interest to that for HIV disease.

  • Our "continuing series" profiles individual states--in this issue Indiana and Iowa. We name their citizens' top ten killers. Is HIV/AIDS in that list? The answers here.

  • FAIR Members' Soapbox Alerts continue, this time on behalf of those with kidney diseases & CVD

  • Our "Focus Disease of the Month": Diabetes

June, 2007
includes full stories, videos and pictures on these topics:

  • $$33 Billion for HIV/AIDS versus $26 Billion for all non-AIDS illnesses? The President and the House of Representatives questionable favoritism for HIV/AIDS is discussed.

  • In our continuing series exposing exaggerations regarding HIV/AIDS, we offer various examples by the Mayor of the District of Columbia, the Centers for Disease Control, UNAIDS off by 70 percent on its India estimates, Minnesota's HIV/AIDS Director and Dr. Fauci make another appearance in this section.

  • A look back at hyperbole from the eighties by Oprah, the Surgeon General, TIME Magazine and the CDC with its ad campaign's infamous, false phrase, "If I can get AIDS, anyone can."

  • While HIV/AIDS deaths throughout America have plummeted for a decade, the Centers for Disease control has not made similar adjustments to its estimates for HIV/AIDS deaths. In fact, their totals have essentially remained unchanged. We asked the CDC Director to change their figures to more accurately reflect the states' totals.

  • Travel with FAIR to Canada and meet the amazing George Marcello and his audience with the pope in promoting organ donation and now, FAIR in Canada (video file included). Then to Illinois with the Vietnam veterans of VietNow, with PBCers in Burbank, CA, and then to Loma Linda, CA, Thermal, CA with many high school students and then view an NBC video from Palm Springs, CA with Anchorman Tom Jordan who profiles FAIR in a balanced report of HIV/AIDS favoritism.

  • Our President & CEO, Dr. Darling, joined with our 28-member Board of Directors in communicating to the Senate and House Appropriations Subcommittees' hearings on the 2008 NIH budget. We provide the letters for your review.

  • In our continuing "Get acquainted with the Board of Directors" series, we are proud to profile five of the members of our Board who solidify our efforts.

  • Even Costco is discussing if people should get paid for donating organs. Read Yale University transplant surgeon Amy Friedman, MD's, powerful arguments for allowing payment of financial donation benefits to donors and donor families to reverse America's organ donor crisis

  • Listen to Magic Johnson discuss the great HIV drugs with this audio file.

  • The NY State Health Commissioner stated that the epidemic must be stopped. Was he speaking of HIV? No, he was speaking of hepatitis C.

  • An increasing amount of cardiovascular disease is due to diabetes yet funding is poor relative to HIV/AIDS. The full story here.

  • In a major effort organized by the Coalition for Health Funding and supported by the Ad Hoc Group for Medical Research, FAIR joined with hundreds of national organizations in urging Congress to increase bio-medical research funding.

  • As confirmed at the Stanford School of Medicine, a new test helps identify which patients with chronic hepatitis C may progress to cirrhosis. If you have chronic HCV and are without symptoms, this test may help you determine if the difficult treatment is even necessary.

  • Dr. Charles Farthing, Chief of medicine at the AIDS Healthcare Foundation in Los Angeles, said of the new drug, ""I was almost staggered," and added that one patient, who had failed to respond to five other drug regimens, is now "fit as a fiddle."

  • Sharon Stone raises another $9 million for HIV. Full story here and listen to her radio ads that urge you to send more $$ for AIDS research. They have been broadcast twice weekly for many years.

  • Listen to Dr. Fauci, who oversees all US AIDS research, state he now wants to spend his billions on an HIV vaccine. Is that fair to thousands of non-AIDS illnesses?

  • Bill Gates gives another $10 million for pediatric AIDS research on top of his hundreds of millions already spent. You'll be surprised by the actual number of cases and deaths in children from HIV compared to other illnesses, like SIDS.

  • A criminal hearing in Adelaide, Australia has become the focus of international attention as fundamental claims by orthodox AIDS researchers — including the infamous Dr Robert Gallo himself on the stand — have come under vigorous cross-examination that demands scientific evidence that the virus even exists. Full story here.

  • The HIV/AIDS Clinical Trials Parade Continues. Compare the number of clinical trials for your disease of interest to that for HIV disease.

  • Here In our last Newsletter we brought to your attention a $1 billion HIV/AIDS fraud scheme. This month we report on Ten Florida medical clinic owners indicted for allegedly defrauding Medicare by improperly billing the program for millions of dollars of unnecessary HIV/AIDS treatments and medical equipment.

  • Our "continuing series" profiles individual states--in this issue Idaho and Illinois. We name their citizens' top ten killers. Is HIV/AIDS in that list? The answers here.

  • On behalf of rare illnesses like our focus disease of the month, Primary Biliary Cirrhosis, send an alert to your politicians today.

  • Leave A Legacy by Remembering FAIR. We are most grateful for your continuing support.

March, 2007
includes full stories, videos and pictures on these topics:

  • We occasionally profile courageous patients, but no patient has even touched us as much as Peggy Chun who has managed to continue painting beautiful art while paralyzed. Read the wonderful story of Peggy, who is afflicted with our "Focus Disease of the Month"--amyotrophic lateral sclerosis, otherwise known as ALS and Lou Gehrig's disease.

  • Travel with us: as we appear on CNN and call for redistribution of a portion of HIV funding to non-AIDS illnesses, in presentations to the USC kidney transplant team, to Loma Linda University's ethic's classes and to pharmacists in Palm Springs, CA.

  • In his powerful new book James Chin, the former Chief of the World Health Organization's Global Programme on AIDS and a Clinical Professor of Epidemiology, School of Public Health, UC California at Berkeley, debunks the myths of heterosexuals being at high risk of getting AIDS outside of Sub-Saharan Africa and shows how these myths are driven by moral and political pressures.

  • In our continuing series exposing exaggerations regarding HIV/AIDS, we offer two examples by the man who oversees all US AIDS research funding, Anthony Fauci, MD. as he speaks of a "crisis" and "devastation" in the black community and to women who are our "mothers, daughters, sisters, aunts, cousins and friends."

  • While HIV/AIDS deaths throughout America have plummeted for a decade, the Centers for Disease control has not made similar adjustments to its estimates for HIV/AIDS deaths. In fact, their totals have essentially remained unchanged. Why keep AIDS deaths estimates artificially high?

  • California's stunning success against HIV/AIDS is revealed.

  • In our continuing "Get acquainted with the Board of Directors" series, we are proud to profile three eminent transplant surgeons and an attorney who solidify our efforts.

  • We petition to testify before the House of Representatives Subcommittee overseeing NIH research funding. Read our request and learn why you cannot petition to testify before the Senate Subcommittee. Indeed, who IS allowed to testify there?

  • FAIR not only supports fairer and more equitable research funding, but also increased overall funding for bio-medical research. YOU CAN HELP! With zip code technology, you can support an ongoing bi-partisan Congressional effort to provide significantly increased funding for research on your disease of interest and ask that HIV/AIDS favoritism be eliminated if the effort for increased funding is successful.

  • WHO's global diabetes forecast may be far too low--the full story.

  • Various Senate and House legislative health assistants working for the Appropriation's Subcommittees overseeing NIH funding requested sample questions that they might pose to the NIH Director. Our Founder provided such questions that you may also view.

  • The full story of a past AIDS Director pleading guilty to a $1 Billion fraud in South Florida.

  • A new "continuing series" in which we profile individual states, in this issue Georgia and Delaware. We name their citizens' top ten killers. Is HIV/AIDS in that list? The answers here.

  • The HIV/AIDS Clinical Trials Parade Continues. Compare the number of clinical trials for your disease of interest to that for HIV disease.

  • The United Organ Transplant Association presents a wonderful gala and a chance to win two free days at one of America's best recording studios for your band or for you to record and mix the music with a top Producer!

  • On behalf of rare illnesses like ALS, send an alert to your politicians today.

  • FAIR grass roots membership is important! Help us recruit new members today with this information and link. Joining is free!

December, 2006
includes full stories on these topics:

  • Travel with us to Congress and view pictures of our visits to dozens of Congressional offices in the fight for fair and equitable research funding.

  • View and listen to the man in charge of our government's AIDS research, Dr. Fauci, make a stunning admission that gives great credibility to our call for re-distribution of a portion of HIV funding

  • Dr. Fauci has started a PR campaign to educate you that a vaccine against HIV is necessary, but he includes no business plan to clarify the expense to taxpayers and, indeed, is a vaccine even necessary?

  • You'll be surprised at who actually controls HIV research funding dollars. Is it the Director of the entire NIH?

  • Continuing evidence of the need to re-distribute a portion of HIV's excessive funding is seen in this NIH announcement.

  • "FAIR's Board of Directors at work": In this ongoing segment, we proudly profile Leonard J. Morse, MD, Commissioner of Public Health and member of the Board of Directors of the AIDS Project for the city of Worcester, Massachusetts.

  • Listen to FAIR Board Member and malpractice attorney Arthur Curley's powerful input at a FAIR Board meeting as he discusses the favoritism in the legal system afforded HIV/AIDS patients and the need to give the power back to the physician when treating an HIV/AIDS patient.

  • What does Peter Piot, executive director of UNAIDS (Joint United Nations Program on HIV/AIDS), say is the solution to global AIDS? More research?

  • Read the full story of HIV/AIDS patients' life expectancy now being significantly greater than two decades with $600,000 in taxpayer support dollars shouldering the expense per patient.

  • Helen Altonn and others in Hawaii give a first-hand view of the great success of HIV drugs and describe how they are living long and productive lives while having been infected for years.

  • Stem Cell Research Advancements for diabetes, heart & liver disease are detailed here.

  • We give you the Journal of the American Medical Association study that shakes AIDS science and angers HIV advocates.

  • Inova Fairfax Hospital Liver Transplant Center Closes--Why?
  • In his powerful letter to the New York Transplant Council's Committee on the organ-donor policy of Presumed Consent, Michel Mendler, MD, who transplanted patients for years as a Hepatologist in France at the University of Rennes, gives great credibility to this much needed organ-donor policy.

  • The new organ-donor policy promoted by LifeSharers is good, but insufficient to eliminate the organ-donor crisis in America. Read the Pittsburgh Tribune story and our reply here.

  • Revealing stories on AIDS hype by Newsweek, CNN and others. Is 41 deaths up to 2002 (perhaps zero now) in Washington, DC a crisis?

  • The HIV/AIDS Clinical Trials Parade Continues. Compare the number of clinical trials for your disease of interest to that for HIV disease.

  • On behalf of rare illnesses, send an alert to your politicians today.

  • Help us meet a $1,500 challenge grant from a generous donor.

  • Focus Disease of the Month: Prostate Cancer. What are the symptoms, treatment, prevalence and research funding in comparison to AIDS?

September, 2006
includes the full stories on these topics:

  • FAIR's communications between Warren Buffet expressing concern regarding his $37 billion stock pledge to the $29 billion Bill and Melinda Gates Foundation, much of which will go to HIV/AIDS.

  • Gates Gives $787 Million more to fight AIDS, TB, Malaria: total now $6.5 billion

  • NIH Director, Elias Zerhouni, MD, responds to FAIR's Request for more fair and equitable research allocations

  • Update: California AIDS surveillance report. Eight percent are women and two percent are heterosexual in origin plus more..

  • FAIR submitted an Abstract in favor of increased funding for Diabetes Mellitus bio-medical research to the Sixth Annual Diabetes Technology Society's Meeting in Atlanta. GA. Co-written by our Founder and Board members, Dr's Morse, Concepcion and Hillebrand..

  • President Clinton: "People living with HIV and AIDS
    can live a normal life ..

  • FAIR's Founder Challenges Hollywood's Sharon Stone to debate

  • FAIR's Board of Directors at work: In our continuing "get acquainted with the Board" series, we take this opportunity to profile orthopedic surgeon Phil Berry, MD, of Dallas. Dr. Berry's career is noted for many impressive achievements as well as his gentle demeanor with patients, as well described in this Dallas Morning News article that we provide for your viewing.

  • We have an organ donor crisis in the USA with one person dying every 90 minutes while waiting for an organ. Here you can easily send a prepared letter in support of new organ donor policies to President Bush and your Congresspersons today.

  • The Chairman of the Nat. Kidney Foundation squares off against USA Today Editor on need for new organ donor policies. FAIR contributes to the debate.

  • A Potentially life-saving LA Times article for those on organ donation waiting lists

  • FAIR Adds Informative New Table to "The Sixteen" Page Courtesy of HELP!

  • In this informative exposé by Elaine S. Povich for the American Association for Retired Persons with revealing statistics that support FAIR's position, one of many quotes comes from Sam Gundy, MD, Chairman of the Alzheimer's Association's medical & scientific advisory committee: "The great progress in Alzheimer's research....is threatened.

  • Recently, Harper's Magazine stunned the HIV community and the publishing industry by publishing Celia Farber's (pictured to the left) expose, AIDS and THE CORRUPTION OF MEDICAL SCIENCE. Ms Farber and Harper's were severely criticized by AIDS activists. A group of scientists and physicians, Rethinking AIDS, has released a rebuttal finding "no serious errors."

  • FAIR joined with 590 organizations in support of HR 810, the House Resolution whose goal is to move stem cell research forward in the USA. Two HIV/AIDS organizations participated.

  • Cancer Institute's New Director Talks of Cutbacks

  • FAIR's Request to American Diabetes Association 2007 Scientific Sessions

  • The HIV/AIDS Clinical Trials Parade Continues. Compare the number of clinical trials for your disease of interest to that for HIV disease.

  • On behalf of Rare Illnesses, Send an Alert to your Politicians today!

  • Leave A Legacy by Remembering FAIR. We are most grateful for your continuing support.

  • Focus Disease of the Month: Muscular Dystrophy

June, 2006
includes the full stories on these topics:

  • FAIR to NIH Director, Pres. Bush, Senate and House: "Recognize the great success of HIV/AIDS researchers and re-distribute some of HIV research funding to other illnesses"

  • "Scientists feel deflated as NIH Research bubble begins to pop"

  • Having achieved excellent drugs for treatment, the NIH now shifts HIV $$ to finding a vaccine. Is that Appropriate?

  • "The End of AIDS": a global summit with President Clinton, Richard Gere and many AIDS advocates. Was the need for more research their focus as the solution to HIV/AIDS?

  • News of a new drug for Parkinson's is offset by the disclosure of the large numbers suffering from this illness.

  • FAIR's Board of Directors at work: we begin a "get acquainted with the Board" series this month by profiling Dr. Charles Goodacre, Dean of the Loma Linda University School of Dentistry (LLUSD)

  • A group of 14 nations, led by France, has announced that they will impose a tax on airline passengers to help buy drugs for people infected with HIV/AIDS

  • Al Gore, global warming and FAIR.

  • The CDC previously said it wanted to test all women for HIV, now it wants to test everyone. Is that appropriate? Our response is included.

  • NIH Announces new Clinical Studies on Orphan (rare) Diseases--FAIR: "Insufficient Funding"

  • Travel with FAIR and meet dozens upon dozens of new members at Diabetes Expos in Phoenix and Seattle. See those we present to and hear a radio interview with our founder.

  • The HIV/AIDS Clinical Trials Parade Continues. Compare the number of clinical trials for your disease if interest to that for HIV disease.

  • HIV patients who also have hepatitis C have a poorer result
    after starting treatment than those with only HIV. So why is so little spent on hepatitis C?

  • Easily send an alert to President Bush, VP Cheney, your Senators and/or your Representatives today on behalf of those with hepatitis C or diabetes.

  • FAIR membership is important! Help us recruit new members today with this information and link.

  • Focus Disease of the Month: Diabetes. Does it really kill more Americans than AIDS and breast cancer combined?

April, 2006

Do you know you have AIDS? With complete disregard for all those
suffering from non-AIDS illnesses, the latest amfAR ad campaign
for HIV/AIDS proclaims, "WE ALL HAVE AIDS, IF ONE OF US DOES." FAIR disagrees.
 


Sharon Stone asks Americans almost daily to give to the organization she touts, the American Federation for AIDS Research (amfAR). Is she successful? Their CEO's total compensation is $320,134 and all employees receive $5,442,557. Check amfAR's complete IRS Form 990.




In PEOPLE magazine, Stone says "[AIDS is] much worse [now]." Is that true? Read our rebuttal submitted to PEOPLE.
 

"Placing AIDS in proper perspective." As reported by the Associated Press's Margie Mason, cardiovascular disease kills 13 million each year, which is almost triple the number who die of AIDS, malaria and TB combined.

From the Centers for Disease Control: HIV/AIDS deaths continue to decline significantly
 

The States' total of HIV/AIDS deaths is 11,919 which is significantly lower that
the 15,798 reported by the CDC. Visit this link to check the number of deaths in
your state.


Has this success against HIV/AIDS been recognized by the NIH with reallocation of $$ from HIV to other illnesses? Check the 2007 funding for your disease of interest.

And how is the SF AIDS Foundation faring? Their Executive Director suffered in comparison to amfAR's, earning only $202,281 in total compensation. We give you their interesting Form 990 also.

Travel with FAIR and meet our CEO at Diabetes Expos in Phoenix and Seattle and view pictures of his exhibiting trips to the American Medical Woman's Assoc. in Tucson, the Univ. of Nevada-Reno School of Medicine in Tahoe, + trips to Palm Desert, Ca and Riverside Ca

 We believe our newest banner, which will hang behind Dr. Darling at his future convention exhibitions, states our Mission Statement with emphasis. View it today.
 


"World-wide HIV cases down for good." New research suggests that the number of HIV infections worldwide appears to have peaked.

Two revealing articles on San Francisco's HIV/AIDS: one informing that their infections have dropped almost 10 percent and the other tells why.

 

We ask MSNBC's new show, The Ethical Edge, Everyday Ethics, to air a program on the ethical considerations in the allocation of federal dollars for disease research.
 

FAIR endorses the Ad Hoc Committee for Medical Research Funding and has applied for membership in this consortium of organizations calling on increased medical research funding by Congress for the NIH.

In the fight for fairness in funding to balance the scales of justice, remember that every dollar counts. All of the progress we have made in educating America on the unfairness of present research policy has been made possible by your generous support. click here to make a "Memorial," "In Memory of," or a general donation and remember, no donation is too small!
 

The HIV/AIDS Clinical Trials parade continues. Well over 2,000 trials for HIV disease, very few for everyone else. Check your disease total.

FAIR Members' Soapbox Alerts continue; this month to those suffering from Parkinson's disease, diabetes and heart disease. Here you can send an alert to President Bush, VP Cheney, your Senators and/or your Representatives now!
 

Our "Focus Disease of the Month" is Parkinson's disease (PD) and we profile a patient, Millie Kondracke, a caregiver, her husband Mort, and his memoir of her struggle with PD that you see to the left. Tributes to Millie from her friends may be viewed in our newsletter and you may read reviews and purchase this book at Amazon.com by clicking the link we provide.

February, 2006

Are HIV/AIDS deaths headed to zero in this country. Find the answer here with surprising facts from some US States.

"Bush budget would cut popular health programs" including Alzheimer's and the Christopher Reeve Foundation, which would receive no more funds. An informative article by Ceci Connolly on the dismay state of the 2007 Bush budget for all diseases, except HIV/AIDS, with other information on increases in HIV/AIDS funding.

FAIR's Board of Directors Communicates with Senate Subcommittee overseeing research funding. Read their letter.



FAIR's Request to House of Representatives Appropriations Subcommittee to Give Oral Testimony regarding the need for fair and equitable funding with a portion of HIV/AIDS dollars redistributed to other illnesses.


FAIR's Follow-up to House and Senate
Appropriation Committees' Legislative Health Aides can be read at this link.


Overestimation of HIV/AIDS in China Disclosed.
How does the media report it versus how FAIR would have headlined the article.

Chicago HIV/AIDS Activists Successful in Silencing FAIR.


Diabetes now affects nearly 21 million Americans – or 7 percent of the U.S. population - and it kills more citizens than AIDS and breast cancer combined, yet only $48 is spent on each diabetic in research versus $3,084 per HIV/AIDS patient. Is that fair?

Traveling with FAIR

To the American Medical Woman's Association's Annual Conference in Tucson, AZ, where FAIR will be an exhibitor next to the AMA

To So. Lake Tahoe as he gives two presentations for the University of Nevada School of Medicine's Office of Continuing Education's 13th Annual Alimentary Update 2006.

To Riverside, CA for the California Hepatitis C's 5th Annual Conference where Dr. Darling will join with FAIR Board members in giving presentations

The HIV/AIDS Clinical Trials Parade Continues. Compare their total to that for your illness.

Are many children dying of HIV/AIDS. What are the facts versus the rhetoric?


"Religious Groups get Chunk of AIDS Money"


FAIR Members' Soapbox Alerts continue; this month they address sufferers from prostate and Alzheimer's disease as well as diabetics. Click the Soapbox logo in our Newsletter to send an alert to President Bush, VP Cheney, your Senators and/or your Representatives today!

Our "Focus Disease of the Month" is Peripheral Neuropathy. We profile the heroic bicyclist Emily Oleksiuk in her battles against this illness that affects ten to twenty times the number of patients with HIV/AIDS.



Although not a governmental research issue, The FAIR Foundation is pleased to join the national campaign to save the lives of abducted children by alerting the public when a child is kidnapped. View our Amber alert messages.

December, 2005

FAIR adds three new eminent members to our national Board of Directors and one is honored twice in Houston...
                  
     Melba Moore MS John Fung MD Leigh Aveling DMin  Houston honors Ray

Illinois HIV/AIDS deaths plummet....learn the full extend of yet another example of the AIDS researchers and activists great success against this illness.



FAIR previously reported on San Francisco overestimating HIV cases by 83 percent. Now they admit to including non-residents in their totals as well. Read about this as well as SF's complete HIV/AIDS report and an article on the big drop in HIV infections in that city.

Washington Post reporter Rob Stein brought to the public's attention a new NIH research policy and asked FAIR's President for our perspective.


FAIR's Founder gave presentations calling for fair and equitable research funding at the Georgia Doty Health Education Fund's "2005 Hepatitis & HIV Health Disparities Conference" in Chicago. Many pictures from the event, including of featured speaker, author, comedian and activist, Dick Gregory, and Melba Moore, Commissioner of Health, St. Louis, seen here with our Founder.

Dr. Paul Volberding, a well-known AIDS researcher and other AIDS scientists were recently cited for bothersome ethical issues. Specifically, the authors of the guidelines widely used to establish standards for prescribing medicines are often paid by the drug companies whose products they discuss.

FAIR rebuts Knoxville News Sentinel story that accused senior citizens of using sexual enhancement drugs and dating younger women, which has led to large number of HIV patients. We strongly disagree and  you can read our rebuttal inside.

The HIV/AIDS clinical trials parade continues unchecked. Check their total against that for your disease of interest here.

See a recent "Soapbox Alert" for citizens suffering from cardiovascular disease (heart, stroke & hypertension), chronic obstructive pulmonary disease (COPD) and diabetes and send an alert to President Bush, VP Cheney, your Senators and/or your Representatives today! 

West Nile Virus deaths plummet, scientists uncertain as to why. Read the full story.

 

The American Association for the Study of Liver Diseases (AASLD) recently held its annual convention. FAIR Board members Dr's Darling, Morse, and Concepcion submitted an Abstract entitled "MAKING THE CASE FOR INCREASED NATIONAL INSTITUTES OF HEALTH RESEARCH FUNDING FOR LIVER DISEASES."


UNOS (United Network for Organ Sharing) oversees all transplants in the USA. Author and noted book reviewer, Jim Gleason, wrote an in-depth review of our Founder's book, Coma Life, in UNOS's bi-monthly magazine, "Update" and references FAIR.

FAIR's Focus Disease of the Month: Alpha-1 Antitrypsin Disease and we profile Alpha-1 suffer, Dave Courtney, in his courageous battle against this illness. Should you be tested? Find links to support groups and more detail information inside.


October, 2005

Travel with FAIR to Washington, DC and view pictures of the 40+ Congressional Health Assistants Dr. Darling spoke to. Also view the full presentation he gave every half-hour for four days that called for fairer and more equitable disease research allocations.


Continue traveling with our Founder as he exhibits at the National Organization for Rare Disease's Annual Convention in Virginia where dozens of new members joined FAIR.

Some say HIV/AIDS funding is appropriate because it may help your disease someday. Read our rebuttal submitted to the Desert Sun Newspaper.

HIV/AIDS Clinical Trials Parade continues: In May we reported 1,742 research clinical trials for HIV/AIDS. In August there were 1,865. Today there are a total of 2,233. Find out how many for your disease in this section.

FAIR's members are continuing to utilize a free service to contact President Bush and VP Cheney for fair allocations in research. Send a "Soapbox Alert" to our leaders that calls for more funding for orphan diseases


Read the full story on Bill Gates beginning to fund hepatitis C research with $12 million and compare that to $5 billion for HIV/AIDS, malaria and TB.
 

FAIR addresses the research funding differentials between HIV/AIDS and other diseases by the NIH. In addition, the Centers for Disease Control also expends significant dollars for HIV/AIDS for other programs. To see the amount spent on HIV/AIDS in your state, visit this section.

FAIR’s Focus this Month: Three Orphan Diseases. All create great suffering, two discriminate against women and all need a great deal more research funding than they are presently receiving. Learn about them and for those afflicted, join support groups and forums in this section.

September, 2005


**Headline News**

Lance Armstrong asks President Bush for $1 Billion dollars. Was that appropriate and fair? You decide.

Having had nineteen stents to clear blocked coronary arteries, FAIR Board member Jim Ward is a tribute to courage and the human spirit. He also deserves kudos for our new "Facts" page with his powerful graphics that bring to the viewer's attention poor research funding for many diseases, including the newly added Chronic Obstructive Pulmonary Disease.

 

How many cases of HIV/AIDS do you think there are in Switzerland? More information on global AIDS.

 


Response to AIDS drugs has improved greatly, giving more evidence for the inappropriateness of present governmental research policies.


FAIR Board member Dave Courtney, who is also VP of The Presumed Consent Foundation, is quoted with FAIR's Founder in the LA Times on need for new the organ donor policy of Presumed Consent to reverse the organ donor crisis in this country. Dave is also a profile in courage as he fights for life against an orphan disease, Alpha-1 Antitrypsin Deficiency.

The National Institutes of Health (NIH) released its new, improved ethics guidelines that our government's researchers must follow.

UK Study Finds HIV Patients Co-infected with
Hepatitis C More Likely to Progress to AIDS.


Continuing Soapbox Ads Educate America and
attract even more FAIR Members.


 

Where have HIV/AIDS funding dollars gone? An eye-opening report by Kerrie Rezak as reported to the CAGW (Citizens Against Government Waste).

 

FAIR's Focus Disease of the Month:

Diabetes: does it kill more Americans than AIDS and breast cancer combined?
 

August, 2005

“HIV-positive patients co-infected with Hepatitis C are up to 80% more likely to die even with HIV treatment.

FAIR Board of Directors members Donald Hillebrand, MD (L) and Lorenzo Rossaro, MD, are in this months news as they are recognized nationally for their laudable efforts for patients.


 

The Numbers Game: How are HIV/AIDS "estimates" derived? Epidemiologists have been overestimating HIV cases in San Francisco by 83 percent. Is SARS killing no one or about to kill everyone?

In May we reported 1,742 research clinical trials for HIV/AIDS. Now, only three months later, there are 1,865. Find out how many for your disease of interest here.

Only patients with one disease get billions in housing funds: HIV/AIDS. Now Riverside County, CA has approved the County's largest affordable-housing project built for people with HIV/AIDS in Palm Springs, CA.


Revisiting the solitary and unusual AIDS case in NYC that caused their Commissioner of Public Health to panic. Have there been thousand more cases?



HIV/AIDS Patients' Sit-in Protest at the Governor's Office
 

FAIR's Focus Disease of the Month is Huntington's Disease and we profile the Huntington's Disease Clinical Research Program (HDCRP) in La Jolla, California and their wonderful team.
 




July, 2005

**Headline News** FAIR Foundation members are publicly called whiners in a Letter to the Editor by a Palm Springs AIDS activist and another implies AIDS deserves more money than your disease because it's contagious and global. FAIR responds decisively


"Traveling with FAIR"
Meet the many Congressional Health Aides our Founder met with recently and join him in a tribute to Vietnam veterans who never came home and to their children at the Vietnam Wall. More from the "March on DC for Hepatitis Awareness" and at Loma Linda University

 

Stunning Research Success: HIV Infected Women Can Give Birth Safely...
 


...Yet...Prenatal HIV Tests Urged for ALL Pregnant Women

 

FAIR Board Members' Prestigious New Positions;
Ray Hill Honored in Houston

 


Pamela Anderson, HIV/AIDS and Hepatitis C; a Hollywood Betrayal

 

Is it ethical for our government to spend $540,000 per death from West Nile Virus (WNV) versus $13,722 on each diabetic death even though diabetes kills more Americans than AIDS and breast cancer combined and 740 times the number from WNV?


You can help save Julie Smith's life by just copying and pasting a few sentences. Please help FAIR members already working nationally to save Julie


 


FAIR's Organ Donation Efforts Gaining National Recognition



The Focus Disease of the Month: COPD (Chronic Obstructive Pulmonary Disease)      


 

June, 2005


Centers for Disease Control's National Center for Health Statistics Reports Significantly Fewer AIDS Deaths
 


India's Claim of a 90 Percent Fall in HIV Cases Upsets AIDS Activists


FAIR is Honored with a Distinguished New Member Joining its Board of Directors: Dr. Charles J. Goodacre

 


 




We set up her web site, orchestrated local and national publicity, but 32-year old Julie Smith who is dying from hepatitis C induced liver failure needs your help too.





FAIR Members Continue Contacting President Bush, this time for patients with Autism, Lung CA, MS & Cystic Fibrosis
 


"Traveling with FAIR"
Follow our Founder with pictures and stories as he educates from St. Louis to California on the need for fair and equitable research allocations.
 

AIDS Infections up and Funding Down, say AIDS activists. What is the true story?

Stunning Success of AIDS Drugs: HIV Positive Patients are Good Kidney Transplant Candidates
 



Now Available in California: Become an Organ Donor by Registering Online

 

 


FAIR's Focus Disease of the Month:

Alzheimer's Disease

"God Bless the Caregivers. They allow us to live with dignity while ill."
 

                  May, 2005


National Institutes of Health 2006 figures released:   Increases in research funding virtually halted




Does one have to be diagnosed with HIV to be classified as having AIDS in Africa? You'll be surprised at the answer in this very informative exposé by Liam Scheff.



Ever wonder how many clinical trials there are for your disease of interest? Find out here and then compare to the very large number for HIV/AIDS.

Only one disease has a separate division of HUD spending billions on housing for AIDS patients. It's called HOPWA (Housing Opportunities for Patients with AIDS) and you can read all about it here.


Brazil turns down 40 million in AIDS funding when diseases here are "dying" for such funding.


Minnesota Cuts AIDS Funding to state's largest AIDS group. The full story of angry legislators.

 

FAIR Foundation Board member Lorenzo Rossaro, MD, is not only Medical Director of Liver Transplantation at the University of California-Davis Medical Center (UCDMC), he is also part of an admirable team of UCDMC physicians bicycling across America to promote organ donation. Meet Dr. Rossaro and his eminent team in this newsletter.


Join us in talking to legislators on the "Hill" and in supporting the March on DC for Hepatitis Awareness and its organizer, Tricia Lupole, who works tirelessly for hepatitis patients.


This Month's Focus Disease of the Month: Lung Cancer
--in comparison to AIDS, how many people get lung cancer and die from it
--if behavior is a causative factor in an illness, should it get more funding?

April, 2005

If you earn $33,399 or less in California, free drugs are now available to treat Hepatitis C! (But... only to those with HIV.)

 

FAIR's Dr. Darling & Dr. Concepcion to Rep. Davis, Chair of the House Committee on hepatitis C: More research funding is needed and funding differential versus AIDS is unfair.

Dr. Darling & Dr. Concepcion reach out again, this time to the House Committee on Appropriations: "Reevaluate AIDS funding based on its lessened threat to society."

Accuracy In Media's Editor, Cliff Kincaid,
addresses AIDS favoritism in "Saving Millie": "
Filmmakers and commentators seem to be afraid to stand up to the power of the AIDS lobby." "There is something wrong with a system that spends money on diseases in relation to how much attention they get from celebrities and the media."

What infectious diseases are really affecting communities other than those with high HIV/AIDS populations such as San Francisco, New York City and Palm Springs, We think you'll be surprised.

FAIR's members are continuing to utilizing a very inexpensive service to contact President Bush and VP Cheney for fair allocations in research, and at the same time they are alerting thousands on the need for change.

California Hepatitis C Task Force Honors FAIR Founder and Diane Silvestre, M.D. at the Task Force's annual convention in South Lake Tahoe, CA. Event pictures are included.


FAIR's Focus Disease of the Month: Multiple Sclerosis (MS) and we profile Dr. Cynthia Benz's courageous and moving battle against this disease.

March, 2005

The Centers for Disease Control released the latest 2003 death statistics for AIDS by race, gender & age

Centers for Disease Control Director says Avian Flu is the single biggest threat to the world. What are the eye-opening facts regarding avian flu?

D.C. HIV/AIDS Administration criticized for poor management of federal funds, including spending $450,000 on a luncheon and promotional videos.

Conflicts of interest payments to NIH scientists was banned, but senior scientists are now planning litigation in order to retain their ability to take payments from drug companies.

Forbes Magazine publishes article calling for end to new conflict of interest regulations. FAIR submits rebuttal from its Founder, Richard Darling, DDS, and Board member, Leonard J. Morse, MD.

Japan issues alarm over their new high in AIDS cases. Was the global news justified?





FAIR Members' Soapbox Alerts continue; this month they address prostate disease and Alzheimer's Disease.
 

NIH AIDS Director States "In terms of infectious disease threats, AIDS is not the only show in town." He mentions the flu and SARS, but not hepatitis B or hepatitis C. Surprising SARS stats.


758 scientists, including two Nobel Prize winners, protest latest NIH policy on research allocations that "represents a misdirection of NIH priorities and a crisis for NIH supported microbiologist research."

Although not a governmental research issue, The FAIR Foundation is pleased to join the national campaign to save the lives of abducted children by alerting the public when a child is kidnapped. We have added
time sensitive Amber Alert messages to our website.

                     Focus Disease of the Month: Autism
Learn more of this disease that affects 1.77 million children in the U.S., making it more prevalent than AIDS as well as the following children's diseases combined: Down Syndrome, childhood diabetes, and childhood cancer.

                                February, 2005


NIH slated for tiny 0.7 per cent raise in 2006, but Funding for AIDS Institute Remains Strong


FAIR Communicates with NIH Director
regarding Conflict of Interest Issues


Department of Health and Human Services and
the Office of Government Ethics issue Restrictions on NIH Outside Income


New York City Commissioner of Public Health Panics over 1 New AIDS Case




FAIR Members' Soapbox Alerts regarding Hepatitis B & C, diabetics and others continue
 


NIH West Nile Virus (WNV) Research
Allocation per patient Skyrockets
 




FAIR Announces "Tee Off 4 Life" Golf Classic to benefit patients via The FAIR Foundation and the Loma Linda University Medical Center Transplant Institute
 

Focus Disease of the Month: Hepatitis C (HCV). More AIDS patients are dying from liver failure with HCV as a causative factor than they are of the opportunistic infections that used to kill them.
 

January, 2005

  • Striking end-of-year 2004 Statistics: Deaths in California's newly infected AIDS patients plummet 98 per cent
     

  • NIH Whistleblower says U.S. bungled AIDS study
     

  • FAIR’s Board Opts to address NIH policy rather than individual scientists
     

  • FAIR Members' Soapbox Alerts to
    CVD Patients, diabetics and others

     

  • Which disease kills more women: AIDS, lung cancer, heart attack or breast cancer?
     

  • 79 NEW HIV/AIDS MEDICINES IN DEVELOPMENT; 82 already approved. Compare to your disease
     

  • Focus Disease of the Month: Cardiovascular Disease (CVD) = heart disease and stroke

To view 2004 and earlier Newsletters, click here


Contact Information

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Ph: 760-200-2766
Email
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