|
Points of Interest
on NIH Research
Allocations as of 05/14/08
The CDC estimates 14,016 AIDS deaths in 2006 in
the USA. To see the answer and the
number of deaths in your state, click
here.
Note: we asked each state how many HIV/AIDS deaths they have; their
answer:
10,619.
Cardiovascular Disease kills 870,000 every year, yet
receives over 1/2 Billion less than AIDS
with $29 spent on behalf of each CVD patient
The NIH is spending $3,052 on each
citizen
estimated as having HIV/AIDS
Diabetes kills more Americans than AIDS and breast cancer combined, yet the
NIH spends only $39 on each diabetic
Alzheimer's Disease kills 3.3 times more than AIDS, yet the NIH
spends only $124 on each patient with Alzheimer's Disease
Parkinson's Disease death rate similar to AIDS yet the NIH
spends $124 on each patient
Prostate cancer kills 2 times more than AIDS,
yet the NIH spends only $192 on each patient with prostate disease
Hepatitis C (HCV) kills 12,000, yet the NIH spends
only $20 on each HCV patient
Hepatitis B (HBV) kills 5,000, yet the NIH spends only
$34 on each HBV
patient
The flu (influenza) on average, now kills almost
2+ times more
than AIDS.
Flu: $199 million AIDS: $2.3 Billion
COPD (Chronic Obstructive Pulmonary Dis.) = 126,128 deaths in 2003 yet the NIH spends only
$7 on each patient
West Nile Virus
cases in 2007: 3,623 cases and 124 deaths, which results in
$15,564 spent in research per death.
2007 cases through 2/5/08 = 115 deaths, 3,576 cases. Does this justify
this
disparity in bio-
medical research funding? Sudden Infant Death Syndrome (SIDS) estimated deaths
at
2,162. HIV/AIDS under 13 =
thirteen deaths.
Total USA HIV/AIDS budget for 2009 totals just under
24.1
Billion. $15 Billion
for care, cash & housing assistance & prevention for patients. Total AIDS Funding
since day one: $$ 250 Billion dollars through 2007--almost 1/4 of a trillion
dollars) ($150B thru 2004 from
Henry J Kaiser Foundation
and over $20B every year since then + Congress is going to authorize
another
$50 billion for global HIV, TB & Malaria)
The infection rate for AIDS throughout the entire world is
1 percent or less
except in two countries, Sub-Saharan Africa and the Caribbean. See page 8
from UNAIDS
here (large file, please be patient). For a specific country,
click
here. For AIDS in India, where estimates were 100%
inflated until recently, click
here.
SARS: "Current Situation" from the
CDC states
"there is no known SARS transmission anywhere in the
world." Research monies not disclosed by NIH. Press
coverage: disproportionate.
Monkeypox cases confirmed in the USA:
37,
deaths =0 in 2003. No recent reporting is available from the
CDC.
Statistical supporting links may be viewed
here Color pie chart and graph illustrating disparities in funding may be
viewed here Updates on Funding for your Disease of Interest is
here.
Sixteen
diseases killed a million more American than HIV/AIDS
annually in 1999. There are more now. Please take a moment to view our 28-member
Board of
Directors of physicians and disease advocates To review all FAIR Newsletters, click
here
We appreciate your submitting news stories of interest to us at
fair@dc.rr.com To view a powerful 14 minute video by the American Diabetes
Association and ABC Television,
Click HERE Every donation to FAIR counts! To make a gift in memory of a loved
one or friend, to honor someone or to leave a legacy with estate
planning, simply click
here.
To email a
template letter in support of fair funding
to President
Bush and your Congresspersons. Simply go
here to contact them quickly and easily
with a click,
copy and paste.
View the total 2006 HIV/AIDS USA funding billions and the
amount for each state, most of which is for social programs,
housing assistance, cash payments, meds, etc.
Worldwide, 7.8 million die of CVD, 3.4 million from cancer,
respiratory infections 1.8 million versus 1.4 million from HIV.
See world clock
here.
To send a prepared letter to the President and your Congresspersons
in support of new organ donor policies to reverse USA's organ donor
crisis, click
here.
FAIR's Privacy Policy may be viewed
here.
FAIR is an acronym for Fair
Allocations
In Research.
FAIR is fair. |
Volume 6: Issue 2 |
FAIR NEWSLETTER: June 2008
|
|
FAIR Board member, Leonard Morse, MD, and
NIH HIV/AIDS Director, Anthony Fauci, MD,
honored at UMASS Medical School Commencement


Our Board member, Leonard Morse, MD, (left)
is Commissioner of Public Health, Worcester, Massachusetts and Chair
Emeritus of the American Medical
Association’s Council on Ethical and
Judicial Affairs which oversees the
ethics and legal affairs of all of our
country's physicians. As
reported in the Worcester Telegram,
Dr. Morse was honored recently with a doctor of science
degree at the University of Massachusetts Medical School
graduation ceremonies along with Anthony Fauci, MD, who
is director of the NIH's National Institute
of Allergy and Infectious Diseases that oversees $2.9
billion in HIV/AIDS research funding. To hear Dr. Fauci
previously acknowledge that the success against HIV is
"breathtaking" with patients who "..look and feel well,
living gratifying lives" click
here.
The Centers for Disease Control and
Prevention
(CDC) responds positively to FAIR's request
A
year ago FAIR's CEO joined with our entire Board of
Directors
in writing to the Director of the CDC and pointing
out that although US states' AIDS death totals have been
plummeting, many over 90 percent, the CDC had continued
to report the same deaths totals for HIV/AIDS for many
years as 16,000 to 17,000. In their
recent report we are pleased to see a new estimate
14 percent lower: 14,016, although that number is still
32 percent higher than what the fifty states
have reported to FAIR of 10,615 HIV/AIDS deaths. In
addition, many states readily admit that some of those
patients who they report as having died were HIV/AIDS
patients who died of non-AIDS causes, such as auto
accident, assault, etc.
National Vital Statistics Report
bolsters FAIR's stats
The latest
NVSR report, released two months ago, states
mortality from HIV disease has not been on the list of
15 leading causes of death since 1997. 12,543 persons
died from HIV disease
(Table 10) in the most
recent year of their statistics (2005) and there have
been declines nationally in every state since then. The
age-adjusted death rate declined for the 10th
consecutive year, decreasing 6.7 percent between 2004
and 2005, the largest decrease since 1999. The
NVSR report gives comprehensive details on many
illnesses.
Which kills more globally, chronic
diseases
or infectious diseases like HIV/AIDS?
According
to the United Nations, chronic diseases such as
heart disease, stroke, diabetes and COPD kill more than
HIV/AIDS and other infectious diseases. "In developing
countries -- where diseases such as HIV/AIDS,
tuberculosis and malaria are still prevalent -- are also
seeing a rise in deaths attributed to chronic
condition." The
ongoing world clock has 7.8 million deaths from
cardiovascular disease, 3.4 million from cancer, and 1.8 million
from respiratory infections versus 1.4 million
from HIV.
Health expert calls for
end to UN HIV/AIDS program
Roger
England, chairman of Health Systems Workshop
- an independent advisory group on health
management in poor countries - says UNAIDS
should be disbanded. "HIV is a major disease
in southern Africa, but it is not a global
catastrophe, and language from a top UNAIDS
official that describes it as 'one of the
make-or-break forces of this century' and a
'potential threat to the survival and
well-being of people worldwide' is
sensationalist," Mr England said. "Worldwide
the number of deaths from HIV each year is
about the same as that among children aged
under five years in India." He argues that
"far too much is spent on HIV relative to
other needs and that this is damaging health
systems". His estimates claim HIV causes 3.7
per cent of mortality but receives a quarter
of international healthcare aid and a "big
chunk" of domestic expenditure.
Full story.
Senator Jim DeMint to President
Bush,
"reduce HIV PEPFAR funding"
In a
Washington Times article, Senator Jim DeMint
(R-S.C.) asked President Bush to reduce his global
funding request of $50 Billion and DeMint points out
that the amount Bush requested is over double what we
spend on veterans. It is also almost double the amount
the US spends in research on every disease known to man.
Our
CEO & Board wrote Senator DeMint and asked him to
now turn his attention to the disparities here in
America in our government's disproportionate bio-medical
research funding for HIV versus other illnesses and make
a similar request to the President.
High-Ranking US organ-donor
executive publicly
supports incentivizing living kidney donation
Thomas
Mone is Chief Executive Officer of
OneLegacy, the largest non-profit organ
procurement organization in the USA. He is
also President of the Association of Organ
Procurement Organizations, and is a director
of the United Network for Organ Sharing.
Regarding America's organ-donor crisis of
one waiting patient dying every 82 minutes
due to a lack of donated organs, Tom
recently publicly shared his personal belief
that "the best way to proceed would be with
small-scale pilot programs that offer donors
lifetime insurance coverage."
Tom's courageous announcement mirrors
FAIR's effort for pilot projects of new
organ-donor policies.
We urge all UNOS officials to support
Tom in this laudable policy recommendation.
Physician proposes
paying $47,000US
to living
kidney organ donors

More
support for our
template letter's recommendations was
received by Nephrologist
Gavin Carney, who publicly endorsed
paying for kidneys in Australia and he
stated that the selling of organs would save
thousands of lives and billions of dollars
(Euros). One of our template letter
co-signers, the indefatigable Sally Satel,
MD, has been a tireless proponent of having
a market for organs to reverse the crisis,
including
this recent article by Sally published
in the Wall Street Journal. Kudos to both.
(Carney article submitted by Dave Schoch, a
CA FAIR member and Syracuse University
grad--thanks
Dave!)
Canada sets up $500,000 fund
to assist organ-donor families
Further
evidence of the recognition that dollars
make a difference in organ donation, Canada
has set up a $500,000 fund to provide direct
aid to organ donor families.
Full Story.
|
|
Travel with FAIR
...to
Phoenix, Arizona at an American Diabetes
Association Conference
with thousands of diabetics
Once
again, similar to the avalanche of new
members who joined in Phoenix, Seattle, Las
Vegas, LA, etc. we were uplifted by the great
support we received in Denver, Colorado. Indeed,
one new member joined FAIR every 3.6 minutes for
six hours. To view many of these new
FAIR members, simply click on the ADA logo.
...to
the Los Angeles American Diabetes Association
Expo with six thousand affected by renal disease
In
addition, FAIR's Board of Directors member, Bill
Remak, manned our exhibit at the Los Angeles ADA
Expo and set a record: a new member joined FAIR
every 2.8 minutes for 5.5 hours. In fact, they
were joining so fast, Bill had no time to take
their pictures; kudos to Bill and welcome to all
our new supporters!
|
|
The
media and HIV/AIDS hype refuted
(Note: the FAIR Foundation is an apolitical
501(c)(3)
organization
FAIR corrects
the
Baltimore Sun
In
a 03/31/08 Editorial entitled
“Preventing AIDS” the Sun stated that
16,000--18,000 AIDS related deaths occur
annually and that HIV is transmitted mostly
through heterosexual sex.
We wrote to the editors to correct their
inflated death totals and asked that they
clarify that heterosexual transmission is
only possible when having relations with
someone who has the HIV virus.
Top WHO HIV/AIDS
Official finally admits, "no
generalized epidemic of AIDS in the
heterosexual population outside Africa."
In
a long-overdue and startling honest
statement,
the head of the WHO's department of HIV/AIDS,
Dr. Kevin de Cock,
has admitted in Britain's Independent
newspaper that there will be no
generalized epidemic of AIDS in the
heterosexual population outside Africa. Dr.
de Cock said there were also
"elements of
truth" in the criticism that vast sums are
being spent educating people [heterosexuals]
about the disease who are not at risk, when
a far bigger impact could be achieved by
targeting high-risk groups: men having sex
with men and IV injection drug users. Our
thanks to FAIR member Michael Fumento for
bringing this story to our attention.
"Singapore
sees more HIV infections in 07"
Headline news? You decide...
What are the actual numbers
in
this story by the AP?
In this city of 4.5 million citizens, the
total number ever to have HIV is 3,482 and
HIV is not one of the
top 10 causes of death with 18,000 from
heart disease annually....and
the number with HIV in 2007? 422. One might
remember that over
2,000 infants alone die of Sudden Infant
Death Syndrome in this country every year.
"Iowa health
dept HIV cases hit high"
Headline news? You decide...
In
this article from the Iowa Gazette, the
increase in HIV cases was 14, which was
reported only as a percent. In our
letter to the reporter and the editor,
we questioned the newsworthy nature of this
article and contrasted AIDS deaths in Iowa
of 23 with 6-7,000 Iowans who died of heart disease and
cancer. We suggested the reported focus
on the positive in her reporting of HIV/AIDS
in order to give well-deserved credit to her
state’s citizens. For example, in our
ongoing national
database on HIV/AIDS deaths, only 12
states have fewer deaths—great success and a
great headline!
HIV/AIDS
"skyrocketing" with "emergency numbers"
In a
speech in CT, an HIV/AIDS advocate
stated that HIV in black women and Latinos
was "skyrocketing" and at "emergency
numbers." We prefer to remove the hyperbole
and utilize the
CT 2007 HIV/AIDS Epidemiological Profile
that states that
AIDS cases in women of color dropped from
2005 to 2006 from 34.5 percent to 28.4
percent and overall
deaths in CT to both sexes have fallen 91
percent to 74. The prevalence of diabetes is
at least 2-4 times higher among African
American women and Hispanic/Latinos than
among white women. In addition, the number
of AIDS deaths in blacks and Latinos are
7,426 and 2,425 respectively. Clearly,
the HIV research and drugs are working very
well when compared to all
deaths in black women, the top causes of
which are cardiovascular disease (CVD--38 percent), cancer (21
percent), diabetes
(5 percent) and nephritis (3 percent). The CDC
reports HIV is not one of the top 10
causes of death in women of any race.
|
New York Times Editorial: "No Way
to Run Health Research"; FAIR chimes in with an Op-ed

The NY Times
published an editorial critical of the NIH
in which they stated "Congress
needs to provide the NIH with enough money to keep up
with biomedical inflation and preferably somewhat more."
We pointed out in
our submitted opinion editorial that with the
budgetary constraints now in place, the NIH needs to act
as we all do when money is tight: re-allocated from one
expense (HIV) to other illnesses.
FAIR communicates to NEWSWEEK
editors
on behalf of orphan (rare) diseases
In
a June 9 article in NEWSWEEK magazine (The
Genetic Detectives), NIH Director Elias Zerhouni,
MD, hails their new Undiagnosed Diseases Program for
mysterious diseases. Will it make a significant impact
for those sufferers? As we point out in
our letter to the editor, not until the great
success against HIV is recognized and the favoritism by
the NIH and Congress in bio-medical research funding for
HIV is reversed with proper funding for orphan (rare)
diseases. The latter now receive $200,000, on average,
each for research compared to almost $3 billion for HIV.
|
FAIR's Board of Directors at work
In our continuing "get acquainted with
the Board" series, we are
honored to profile the following Board
members:

Jacqueline Marcell's
recent post in her popular
HealthCentral Blog powerfully presents
the case for equitable research funding for
our Focus Disease of the Month: Alzheimer's
Disease. After caring for her parents,
Jacqueline has become a tireless Advocate
for Alzheimer’s, Caregiving, and Eldercare
Awareness and Reform. She is also a Breast
Cancer survivor, Author of
Elder Rage, radio host with
Coping with Caregiving, a Blog on
ThirdAge and an Alzheimer’s Q&A Column
AgingCare.
Jim Ward of San Diego, CA. It is an
amazing tribute to Jim's courage and
spirit that he has had nineteen
stents to clear blocked coronary
arteries. It will come as no surprise
that he is our patient advocate in
support of increased research dollars
for the 61 million citizens in our
country with cardiovascular disease,
whose definition consists of
heart, stroke & hypertension.

Nancy Zampieri of Charlotte, North Carolina,
is our patient advocate for the patients
who comprise 180,510 new cases and
approximately 40,000 deaths from breast
cancer annually in the United States.
Donald Hillebrand,
MD, is a Hepatologist and Medical
Director of Liver Transplant at Scripps
Green Hospital in La Jolla, CA. In
response to
50,000 being exposed to hepatitis C
in Las Vegas, Dr. Hillebrand has agreed
to help that community by providing care
and he stated that this
will help establish Scripps as the
Las Vegas transplant program in
evaluating the need for transplants
without requiring patients to travel to
CA. He added, "More important than those
advantages, however, is the opportunity
to restore the patients' faith that
suffered after the endoscopy-related
hepatitis outbreak." Full news story on
Dr. Hillebrand's
effort here.

Jill Weissman is a Doctor of Pharmacy,
Transplant Pharmacist and Assistant
Professor in the Department of Pharmacy
Practice at the Loma Linda University
School of Pharmacy in Loma Linda,
California. She tends to patients daily
in the Loma Linda University Medial
Center transplant intensive care unit,
one of whom was our CEO, Dr. Darling, in
1998 and 2001 after his three transplant
surgeries.

Richard Swabb, MD is
Board
Certified in Nephrology and Board Certified
in Internal Medicine at the Loma Linda
University Medical Center,
Loma Linda, California
|
Mark the date: the Central
Valley, CA
hepatitis C summit is coming

On Friday, August 8th of 2008 the CA HCV
Task Force and Impact House of Merced are
presenting prominent speakers at the Central
Valley Viral Hepatitis Summit, a free
educational event covering hepatitis B & C
and their treatment protocols. CEU's will be
available for nurses, pharmacists,
physicians and counselors. More info
here
FAIR Profiles States: Florida
and Hawaii
 What
are the top ten causes of death for the citizens of
Florida and Hawaii as reported
by the Centers for Disease Control and Prevention (CDC)?
Is HIV/AIDS one of them? If not, how do the top ten
compare with HIV? For the top ten causes of death in
FL and HI,
click on their map. For HIV/AIDS deaths in those and all
other states, click
here.
|

yet it still
receives 10 percent of the entire federal research
budget
The House votes: $41 billion more
for HIV
The
House of Representatives
voted to give $41 billion more for HIV/AIDS. In 2004
the Kaiser Foundation
reported US funding for HIV at $150 billion. With
$20+ billion annual funding since then, including over $24
billion for 2009, the total funding by the US
government for HIV disease since its onset is now at 1/4
of a $trillion dollars, yes, a $trillion$.
The Senate increases NIH Research
funding for all.
Was it a significant amount?
The total bio-medical research funding
for every disease know to man by our government to the
NIH is $29 billion and ten percent of that goes to
HIV/AIDS. The Senate increased the overall funding to
the NIH for research. Did they double or triple it as
needed, or at least increase it to be closer to the
global funding for HIV/AIDS of $41 billion? No, the
increase was
only $400 million.
Automatic syringe machines installed to
help prevent spread of HIV
If
you live in the Czech Republic, you can step
up to a machine and get a syringe and
disinfection materials for $1.25 to inject
your drug of choice. If you pay a bit more,
you can also get clean water and Vitamin C.
Full Story
Weekly global reports for your disease?
Undoubtedly
not; however, the Kaiser Family Foundation
provides this extensive, weekly world
report for HIV patients and advocates.
Ex-President Clinton makes our case
In
an
interview with ABC news, does
ex-President Clinton say the solution to
global AIDS is more research? No, he
reiterates our position and the position of
President Bush on the need for more
prevention education, providing the
existing drugs and organizing health
networks to distribute these remedies.
The
States continue great success against
HIV/AIDS

Kentucky↓98
percent,
Minnesota
↓90%, Oklahoma
↓97%, Alaska
↓97%, Connecticut↓91%,
Hawaii↓93%, Pennsylvania
↓95%, W. Virginia
↓92%, Illinois
↓89%, and so on throughout the USA
reflecting the excellent success of HIV drugs,
prevention education and harm reduction policies
(providing clean syringes to IV drug users). Click
the map to see all states and their progress.
|
FAIR names Jerry
Jackson Director of Information
Services for New Organ-Donor Policy Advocacy
Liver
transplant recipient, Jerry Jackson, of
Malibu, CA has
been named FAIR's Director of Information
Services for
New Organ-Donor Policies.
Prior to retiring, Jerry was
Executive
Vice President/Legislative Advocate
regarding local issues for the Santa Monica,
CA Chamber of Commerce, the Executive
Director/Legislative Advocate in cities
state-wide and Sacramento for The Sign Users
Council of California and the Executive
Director/Legislative Advocate in Sacramento
for the California State Electronics
Association (representing world-wide
manufacturers of electronic
equipment.) Click on Jerry to view his
powerful organ-donor video.
FAIR's Press Release:
Immediate Action Needed to Reverse America's
Organ-Donor Crisis
With
one person dying every 82 minutes and
almost 100,000 sick patients waiting for the "Gift
of Life," you can help by simply copying
this opinion editorial and sending it to
your local or national media
favorites and to your Congresspersons and President Bush. Click on the Please Help logo!
FAIR to Riverside, CA
reporter, "use the word 'crisis'"
and finish OPO Vice President's sentence
fully
In
the
Press Enterprise's article on liver
transplants being given to Japanese
criminals, the Vice President of
Communications for the largest organ
procurement organization in the USA, Bryan
Stewart, said "The system works." In
our CEO's email, Dr. Darling asked the reporter
and his associates to start regularly using
the adjective "crisis" in any story on organ
donation and pointed out that Bryan's
sentence was cut short. It should have read,
The system works, but
"the
truth is that our country’s organ-donor
policies of 'altruism' and organ-donor
Collaboratives are failing miserably in
meeting the demand for organs.”
New Jersey mandates
organ donation choice

A New Jersey Senate committee voted to
require people applying for driver's
licenses and identification cards to state
whether they want to be an organ donor. The
measure would also require high schools to
teach about organ donation. New Jersey would
be the first state to impose such
requirements. Our thanks to FAIR member Deb
Lynch for bringing this news to our
attention. Click on the organs to read
the full article.
Waiting
for a Liver Transplant?
Are
you waiting for a liver transplant?
Which areas/hospitals are transplanting
years sooner than others. To calculate
your MELD score and find the region/state
that is transplanting at the lowest MELD
score, click the liver.
Illegal Immigration
debate hits liver transplant patients
Ana
Puente is an illegal immigrant requesting
her fourth liver transplant in this country
at US taxpayer expense.
Ana states, ""It doesn't matter if I'm
undocumented.....They should take care of me
at UCLA for the rest of my life because I've
been there since I was a baby." Some citizens with
hepatitis C are being denied re-transplant
due to the possibility of recurrent
infection, and older renal patients are
being refused kidney transplant in favor of
younger sufferers. The FAIR Foundation liver
disease support group has had one member
die, on average, every three months for
seven years while waiting for a new liver. Is it ethical to
transplant and/or
re-transplant those here illegally while one legal
citizen in need of a transplant dies every
82 minutes waiting for an organ in the USA?
A new Mexico website
for those on the waiting list:
adopt a child, take
its kidney.
Fact or fiction?
Is this really possible
that a person in need of an kidney or part
of a liver can adopt a child and the site
will guaranty a match, thus enabling you to
take the child's kidney or liver lobe? No,
please note that as reported by
snopes.com,
this website is a scam.
On the other hand...
Just when efforts like the web site above
test our concept of humanity, we are
presented with another story to enrich our
faith in mankind, well, womankind would be
more appropriate. In our first-ever report
that is not associated with our mission
statements, we bring you
this uplifting story--kudos to these
two ladies! The HIV/AIDS
Clinical Trials Parade Continues
In May there were
1,742
HIV/AIDS Clinical Trials, in August, 1,865, in October
2,233, As of 6/3/08 there are 3,538. Find out how many for your disease
by clicking
here. For example, there are a total of only
605 for COPD, 571 for hepatitis C (many
involving HIV & HCV) and for our Focus Diseases
of the Month: 489 for Alzheimer's Disease.
FAIR Members' Soapbox Alerts continue
...this month to those suffering
from Alzheimer's disease. To easily send an alert
today to
President Bush, VP Cheney, your Senators and
Representatives in support of fairer funding for this
illness, click the Soapbox logo!
To those with HCV, cancer, multiple
sclerosis,
rheumatoid arthritis and anemia...
Avalere
Health today reminded consumers to pay close attention
to all aspects of their Medicare prescription drug plan,
including on which “tier” or group their medications are
covered. The Avalere President states that “People with
cancer, multiple sclerosis, hepatitis C, rheumatoid
arthritis, and anemia should be paying very close
attention to tiering in Medicare."
Full story.
New Treatment for Hepatitis C?
Researchers
at the University of Oklahoma Health Sciences Center
have found a new use for an old drug,
Fluvastatin, which significantly lowered the viral load,
or levels of hepatitis C virus, for up to six weeks when
used
alone. Full story
here.
Focus Disease of the Month:
Alzheimer's Disease
-
Alzheimer's is fatal:
71,696 died of Alzheimer's Disease in 2007. It is
the seventy leading cause of death and six times the
number
reported for HIV/AIDS.
-
Alzheimer's
is serious: there is no medical treatment to
cure or completely stop the progression of
Alzheimer’s disease. Three medications can
temporarily mask the symptoms.
-
Alzheimer's Cost to Society:
the direct and indirect costs of Alzheimer's and
other dementias to Medicare, Medicaid and businesses
amount to more than $148 billion
each year. More than 7 out of 10 patients live at
home because neither Medicare nor most private
insurance plans cover long-term care.
-
Alzheimer's is Prevalent:
There are 5.2 million Americans with Alzheimer's
Disease as compared to the CDC's estimate of one
million with HIV/AIDS. 10 million baby
boomers will develop Alzheimer's in their
lifetime and every 71 seconds,
someone develops Alzheimer’s. As many as 10 percent of the
people age 65 and older have Alzheimer's Disease,
and nearly 50 percent of those over 85 percent have it. Some in
their 30's and 40's also get Alzheimer's.
-
Alzheimer's caregivers & cost:
Studies on the Economic Value of Informal Caregiving
in the U.S.,” indicates $196 billion a year is
contributed to the U.S. health care system by an
invisible health care sector — families and friends
who provide care at home for the chronically ill.
Alzheimer's caregiving is estimated to make up
one-third of the total informal caregiving value or
68 Billion Dollars.
-
Alzheimer's Can Be Inherited:
Having a parent or sibling with the disease
increases an individual's chances of developing
Alzheimer's.
-
Fairness? The NIH is spending
only $124 on
each patient with Alzheimer's in research in 2009
versus $3,052 on
each patient who has been identified as having AIDS
-
Alzheimer's and all other diseases
except HIV/AIDS would receive larger research
allocations under the FAIR Foundation's
recommended policies.
Alzheimer's statistics from the
Alzheimer's Association and in addition, their
comprehensive 2008 facts and figures report
which includes a state-by-state breakout of facts.
The FAIR Foundation is growing fast, but
we need more members to change Congress and the NIH.
Please help us by forwarding this Newsletter on to your
associates and friends. With strength in numbers, we
WILL achieve fair and equitable NIH distributions for
Alzheimer's disease
and ALL non-AIDS diseases. Member sign-up information is
confidential.
donate...
As
you consider your year-end tax-deductible donations, we
would be most grateful for your financial support.
Please help us benefit all who need fair and equitable
research allocations for their disease of interest and to
achieve new organ-donor policies to reverse the organ-donor
crisis in America. Indeed, we are the only nonprofit
organization solely dedicated to fairness in research funding
and we respectfully ask for your help in funding our effort.
Remember, we have no paid employees. Indeed; we are all
volunteers so every dollar of your donation will go to
continuing our
educating Congress and the NIH on the need for change to
insure fair funding for your disease of interest. Thank
you in advance for your generosity!
Please
make your donation on our secure website or mail a check made out to the FAIR
Foundation at 78-629 Bougainvillea Drive, Palm Desert, CA 92211.
The FAIR Foundation;
E-mail us at fair@dc.rr.com
FAIR Mission Statement:
The FAIR Foundation is
dedicated to fair and equitable distribution of
research funds by the government for all diseases, including the 16
that kill a million more Americans than AIDS. A disease’s mortality rate
shall be given emphasis in determining allocations and other
secondary factors shall be utilized to insure diseases
that cause great suffering but have low mortality rates will
also receive significantly increased funding.
|