Points of Interest on NIH Research Allocations as of 05/14/08

The CDC estimates 14,016 AIDS deaths in 2006 in the USA. To see the answer and the number of deaths in your state, click here. Note: we asked each state how many HIV/AIDS deaths they have; their answer: 10,619.

Cardiovascular Disease kills 870,000 every year, yet receives over 1/2 Billion less than AIDS with $29 spent on behalf of each CVD patient

The NIH is spending $3,052 on each citizen estimated as having HIV/AIDS

Diabetes kills more Americans than AIDS and breast cancer combined, yet the NIH spends only $39 on each  diabetic

Alzheimer's Disease kills 3.3 times more than AIDS, yet the NIH spends only $124 on each patient with Alzheimer's Disease

Parkinson's Disease death rate similar to AIDS yet the NIH spends $124 on each patient

Prostate cancer kills 2 times more than AIDS, yet the NIH spends only $192 on each patient with prostate disease

Hepatitis C (HCV) kills 12,000, yet the NIH spends only $20 on each HCV patient

Hepatitis B (HBV) kills 5,000, yet the NIH spends only $34 on each HBV patient

The flu (influenza) on average, now kills almost 2+ times more than AIDS. 
Flu: $199 million
AIDS: $2.3 Billion

COPD (Chronic Obstructive Pulmonary Dis.) = 126,128 deaths in 2003 yet the NIH spends only $7 on each patient

West Nile Virus cases in 2007: 3,623 cases and 124 deaths, which results in $15,564 spent in research per death. 2007 cases through 2/5/08 = 115 deaths, 3,576 cases. Does this justify this disparity in bio- medical research funding?

Sudden Infant Death Syndrome (SIDS) estimated deaths at 2,162. HIV/AIDS under 13 = thirteen deaths.

Total USA HIV/AIDS budget for 2009 totals just under 24.1 Billion. $15 Billion for care, cash & housing assistance & prevention for patients. Total AIDS Funding since day one: $$ 250 Billion dollars through 2007--almost 1/4 of a trillion dollars) ($150B thru 2004 from Henry J Kaiser Foundation and over $20B every year since then + Congress is going to authorize another $50 billion for global HIV, TB & Malaria)

The infection rate for AIDS throughout the entire world is 1 percent or less except in two countries, Sub-Saharan Africa and the Caribbean. See page 8 from UNAIDS here (large file, please be patient). For a specific country, click here.

For AIDS in India, where estimates were 100% inflated until recently, click here.

SARS: "Current Situation" from the CDC states "there is no known SARS transmission anywhere in the world." Research monies  not disclosed by NIH. Press coverage:  disproportionate.

Monkeypox
cases confirmed in the USA: 37, deaths =0 in 2003. No recent reporting is available from the CDC.

Statistical supporting links may be viewed here

Color pie chart and graph illustrating disparities in funding may be viewed here

Updates on Funding for your Disease of Interest is here.

Sixteen diseases killed a million more American than HIV/AIDS annually in 1999. There are more now.

Please take a moment to view our 28-member Board of Directors of physicians and disease advocates

To review all FAIR Newsletters, click here

We appreciate your submitting news stories of interest to us at fair@dc.rr.com

To view a powerful 14 minute video by the American Diabetes Association and ABC Television, Click HERE

Every donation to FAIR counts! To make a gift in memory of a loved one or friend, to honor someone or to leave a legacy with estate planning, simply click here.

To email a template letter in support of fair funding to President Bush and your Congresspersons. Simply go here to contact them quickly and easily with a click, copy and paste.

View the total 2006 HIV/AIDS USA funding billions and the amount for each state, most of which is for social programs, housing assistance, cash payments, meds, etc.

Worldwide, 7.8 million die of CVD, 3.4 million from cancer, respiratory infections 1.8 million versus 1.4 million from HIV. See world clock here.

To send a prepared letter to the President and your Congresspersons in support of new organ donor policies to reverse USA's organ donor crisis, click here.

FAIR's Privacy Policy may be viewed here.

FAIR is an acronym for Fair Allocations In Research.

FAIR is fair.

Volume 6: Issue 2
 

FAIR NEWSLETTER: June 2008
 


FAIR Board member, Leonard Morse, MD, and
NIH HIV/AIDS Director, Anthony Fauci, MD,
honored at UMASS Medical School Commencement

Our Board member, Leonard Morse, MD, (left) is Commissioner of Public Health, Worcester, Massachusetts and Chair Emeritus of the American Medical Association’s Council on Ethical and Judicial Affairs which oversees the ethics and legal affairs of all of our country's physicians. As reported in the Worcester Telegram, Dr. Morse was honored recently with a doctor of science degree at the University of Massachusetts Medical School graduation ceremonies along with Anthony Fauci, MD, who is director of the NIH's National Institute of Allergy and Infectious Diseases that oversees $2.9 billion in HIV/AIDS research funding. To hear Dr. Fauci previously acknowledge that the success against HIV is "breathtaking" with patients who "..look and feel well, living gratifying lives" click here.

The Centers for Disease Control and Prevention
(CDC) responds positively to FAIR's request

A year ago FAIR's CEO joined with our entire Board of Directors in writing to the Director of the CDC and pointing out that although US states' AIDS death totals have been plummeting, many over 90 percent, the CDC had continued to report the same deaths totals for HIV/AIDS for many years as 16,000 to 17,000. In their recent report we are pleased to see a new estimate 14 percent lower: 14,016, although that number is still 32 percent higher than what the fifty states have reported to FAIR of 10,615 HIV/AIDS deaths. In addition, many states readily admit that some of those patients who they report as having died were HIV/AIDS patients who died of non-AIDS causes, such as auto accident, assault, etc.

National Vital Statistics Report bolsters FAIR's stats

The latest NVSR report, released two months ago, states mortality from HIV disease has not been on the list of 15 leading causes of death since 1997. 12,543 persons died from HIV disease (Table 10) in the most recent year of their statistics (2005) and there have been declines nationally in every state since then. The age-adjusted death rate declined for the 10th consecutive year, decreasing 6.7 percent between 2004 and 2005, the largest decrease since 1999. The NVSR report gives comprehensive details on many illnesses.

Which kills more globally, chronic diseases
or infectious diseases like HIV/AIDS?

According to the United Nations, chronic diseases such as heart disease, stroke, diabetes and COPD kill more than HIV/AIDS and other infectious diseases. "In developing countries -- where diseases such as HIV/AIDS, tuberculosis and malaria are still prevalent -- are also seeing a rise in deaths attributed to chronic condition." The ongoing world clock has 7.8 million deaths from cardiovascular disease, 3.4 million from cancer, and  1.8 million from respiratory infections versus 1.4 million from HIV.

Health expert calls for end to UN HIV/AIDS program

Roger England, chairman of Health Systems Workshop - an independent advisory group on health management in poor countries - says UNAIDS should be disbanded. "HIV is a major disease in southern Africa, but it is not a global catastrophe, and language from a top UNAIDS official that describes it as 'one of the make-or-break forces of this century' and a 'potential threat to the survival and well-being of people worldwide' is sensationalist," Mr England said. "Worldwide the number of deaths from HIV each year is about the same as that among children aged under five years in India." He argues that "far too much is spent on HIV relative to other needs and that this is damaging health systems". His estimates claim HIV causes 3.7 per cent of mortality but receives a quarter of international healthcare aid and a "big chunk" of domestic expenditure. Full story.

Senator Jim DeMint to President Bush,
"reduce HIV PEPFAR funding"

In a Washington Times article, Senator Jim DeMint (R-S.C.) asked President Bush to reduce his global funding request of $50 Billion and DeMint points out that the amount Bush requested is over double what we spend on veterans. It is also almost double the amount the US spends in research on every disease known to man. Our CEO & Board wrote Senator DeMint and asked him to now turn his attention to the disparities here in America in our government's disproportionate bio-medical research funding for HIV versus other illnesses and make a similar request to the President.

High-Ranking US organ-donor executive publicly
supports incentivizing living kidney donation

Thomas Mone is Chief Executive Officer of OneLegacy, the largest non-profit organ procurement organization in the USA. He is also President of the Association of Organ Procurement Organizations, and is a director of the United Network for Organ Sharing. Regarding America's organ-donor crisis of one waiting patient dying every 82 minutes due to a lack of donated organs, Tom recently publicly shared his personal belief that "the best way to proceed would be with small-scale pilot programs that offer donors lifetime insurance coverage." Tom's courageous announcement mirrors FAIR's effort for pilot projects of new organ-donor policies. We urge all UNOS officials to support Tom in this laudable policy recommendation.

Physician proposes paying $47,000US to living
kidney organ donors

More support for our template letter's recommendations was received by Nephrologist Gavin Carney, who publicly endorsed paying for kidneys in Australia and he stated that the selling of organs would save thousands of lives and billions of dollars (Euros). One of our template letter co-signers, the indefatigable Sally Satel, MD, has been a tireless proponent of having a market for organs to reverse the crisis, including this recent article by Sally published in the Wall Street Journal. Kudos to both. (Carney article submitted by Dave Schoch, a CA FAIR member and Syracuse University grad--thanks Dave!)

Canada sets up $500,000 fund
to assist organ-donor families

Further evidence of the recognition that dollars make a difference in organ donation, Canada has set up a $500,000 fund to provide direct aid to organ donor families. Full Story.
 

 
Travel with FAIR

...to Phoenix, Arizona at an American Diabetes
Association Conference with thousands of diabetics

Once again, similar to the  avalanche of new members who joined in Phoenix, Seattle, Las Vegas, LA, etc. we were uplifted by the great support we received in Denver, Colorado. Indeed, one new member joined FAIR every 3.6 minutes for six hours. To view many of these new FAIR members, simply click on the ADA logo.

...to the Los Angeles American Diabetes Association
Expo with six thousand affected by renal disease


In addition, FAIR's Board of Directors member, Bill Remak, manned our exhibit at the Los Angeles ADA Expo and set a record: a new member joined FAIR every 2.8 minutes for 5.5 hours. In fact, they were joining so fast, Bill had no time to take their pictures; kudos to Bill and welcome to all our new supporters!
 


The media and HIV/AIDS hype refuted

(Note: the FAIR Foundation is an apolitical
501(c)(3) organization

FAIR corrects the Baltimore Sun

In a 03/31/08 Editorial entitled “Preventing AIDS” the Sun stated that 16,000--18,000 AIDS related deaths occur annually and that HIV is transmitted mostly through heterosexual sex. We wrote to the editors to correct their inflated death totals and asked that they clarify that heterosexual transmission is only possible when having relations with someone who has the HIV virus.

Top WHO HIV/AIDS Official finally admits, "no
generalized epidemic of AIDS in the heterosexual population outside Africa."

In a long-overdue and startling honest statement, the head of the WHO's department of HIV/AIDS, Dr. Kevin de Cock, has admitted in Britain's Independent newspaper that there will be no generalized epidemic of AIDS in the heterosexual population outside Africa. Dr. de Cock said there were also "elements of truth" in the criticism that vast sums are being spent educating people [heterosexuals] about the disease who are not at risk, when a far bigger impact could be achieved by targeting high-risk groups: men having sex with men and IV injection drug users. Our thanks to FAIR member Michael Fumento for bringing this story to our attention.

 "Singapore sees more HIV infections in 07"
Headline news? You decide...

What are the actual numbers in this story by the AP? In this city of 4.5 million citizens, the total number ever to have HIV is 3,482 and HIV is not one of the top 10 causes of death with 18,000 from heart disease annually....and the number with HIV in 2007? 422. One might remember that over 2,000 infants alone die of Sudden Infant Death Syndrome in this country every year.

"Iowa health dept HIV cases hit high"
Headline news? You decide...

In this article from the Iowa Gazette, the increase in HIV cases was 14, which was reported only as a percent. In our letter to the reporter and the editor, we questioned the newsworthy nature of this article and contrasted AIDS deaths in Iowa of 23 with 6-7,000 Iowans who died of heart disease and cancer. We suggested the reported focus on the positive in her reporting of HIV/AIDS in order to give well-deserved credit to her state’s citizens. For example, in our ongoing national database on HIV/AIDS deaths, only 12 states have fewer deaths—great success and a great headline!

HIV/AIDS "skyrocketing" with "emergency numbers"

In a speech in CT, an HIV/AIDS advocate stated that HIV in black women and Latinos was "skyrocketing" and at "emergency numbers." We prefer to remove the hyperbole and utilize the CT 2007 HIV/AIDS Epidemiological Profile that states that AIDS cases in women of color dropped from 2005 to 2006 from 34.5 percent to 28.4 percent and overall deaths in CT to both sexes have fallen 91 percent to 74. The prevalence of diabetes is at least 2-4 times higher among African American women and Hispanic/Latinos than among white women. In addition, the number of AIDS deaths in blacks and Latinos are 7,426 and 2,425 respectively. Clearly, the HIV research and drugs are working very well when compared to all deaths in black women, the top causes of which are cardiovascular disease (CVD--38 percent), cancer (21 percent), diabetes (5 percent) and nephritis (3 percent). The CDC reports HIV is not one of the top 10 causes of death in women of any race.
 

New York Times Editorial: "No Way to Run Health Research"; FAIR chimes in with an Op-ed

The NY Times published an editorial critical of the NIH in which they stated "Congress needs to provide the NIH with enough money to keep up with biomedical inflation and preferably somewhat more." We pointed out in our submitted opinion editorial that with the budgetary constraints now in place, the NIH needs to act as we all do when money is tight: re-allocated from one expense (HIV) to other illnesses.

FAIR communicates to NEWSWEEK editors
on behalf of orphan (rare) diseases

In a June 9 article in NEWSWEEK magazine (The Genetic Detectives), NIH Director Elias Zerhouni, MD, hails their new Undiagnosed Diseases Program for mysterious diseases. Will it make a significant impact for those sufferers? As we point out in our letter to the editor, not until the great success against HIV is recognized and the favoritism by the NIH and Congress in bio-medical research funding for HIV is reversed with proper funding for orphan (rare) diseases. The latter now receive $200,000, on average, each for research compared to almost $3 billion for HIV.


FAIR's Board of Directors at work
In our continuing "get acquainted with the Board" series, we are
honored to profile the following Board members:

Jacqueline Marcell's recent post in her popular HealthCentral Blog powerfully presents the case for equitable research funding for our Focus Disease of the Month: Alzheimer's Disease. After caring for her parents, Jacqueline has become a tireless Advocate for Alzheimer’s, Caregiving, and Eldercare Awareness and Reform. She is also a Breast Cancer survivor, Author of Elder Rage, radio host with Coping with Caregiving, a Blog on ThirdAge and an Alzheimer’s Q&A Column AgingCare.
 

Jim Ward of San Diego, CA. It is an amazing tribute to Jim's courage and spirit that he has had nineteen stents to clear blocked coronary arteries. It will come as no surprise that he is our patient advocate in support of increased research dollars for the 61 million citizens in our country with cardiovascular disease, whose definition consists of heart, stroke & hypertension.
 



Nancy Zampieri of Charlotte, North Carolina, is our patient advocate for the patients who comprise 180,510 new cases and approximately 40,000 deaths from breast cancer annually in the United States.


 

Donald Hillebrand, MD, is a Hepatologist  and Medical Director of Liver Transplant at Scripps Green Hospital in La Jolla, CA. In response to 50,000 being exposed to hepatitis C in Las Vegas, Dr. Hillebrand has agreed to help that community by providing care and he stated that this will help establish Scripps as the Las Vegas transplant program in evaluating the need for transplants without requiring patients to travel to CA. He added, "More important than those advantages, however, is the opportunity to restore the patients' faith that suffered after the endoscopy-related hepatitis outbreak." Full news story on Dr. Hillebrand's effort here.


Jill Weissman is a Doctor of Pharmacy, Transplant Pharmacist and Assistant Professor in the Department of Pharmacy Practice at the Loma Linda University School of Pharmacy in Loma Linda, California. She tends to patients daily in the Loma Linda University Medial Center transplant intensive care unit, one of whom was our CEO, Dr. Darling, in 1998 and 2001 after his three transplant surgeries.
 



Richard Swabb, MD is Board Certified in Nephrology and Board Certified in Internal Medicine at the Loma Linda University Medical Center, Loma Linda, California

 

Mark the date: the Central Valley, CA
hepatitis C summit is coming

On Friday, August 8th of 2008 the CA HCV Task Force and Impact House of Merced are presenting prominent speakers at the Central Valley Viral Hepatitis Summit, a free educational event covering hepatitis B & C and their treatment protocols. CEU's will be available for nurses, pharmacists, physicians and counselors. More info here

FAIR Profiles States: Florida and Hawaii

What are the top ten causes of death for the citizens of Florida and Hawaii as reported by the Centers for Disease Control and Prevention (CDC)? Is HIV/AIDS one of them? If not, how do the top ten compare with HIV? For the top ten causes of death in FL and HI, click on their map. For HIV/AIDS deaths in those and all other states, click here.
 



yet it still receives 10 percent of the entire federal research budget

The House votes: $41 billion more for HIV

The House of Representatives voted to give $41 billion more for HIV/AIDS. In 2004 the Kaiser Foundation reported US funding for HIV at $150 billion. With $20+ billion annual funding since then, including over $24 billion for 2009, the total funding by the US government for HIV disease since its onset is now at 1/4 of a $trillion dollars, yes, a $trillion$.

The Senate increases NIH Research funding for all.
Was it a significant amount?

The total bio-medical research funding for every disease know to man by our government to the NIH is $29 billion and ten percent of that goes to HIV/AIDS. The Senate increased the overall funding to the NIH for research. Did they double or triple it as needed, or at least increase it to be closer to the global funding for HIV/AIDS of $41 billion? No, the increase was only $400 million.

Automatic syringe machines installed to
help prevent spread of HIV

If you live in the Czech Republic, you can step up to a machine and get a syringe and disinfection materials for $1.25 to inject your drug of choice. If you pay a bit more, you can also get clean water and Vitamin C. Full Story
 

Weekly global reports for your disease?

Undoubtedly not; however, the Kaiser Family Foundation provides this extensive, weekly world report for HIV patients and advocates.
 

Ex-President Clinton makes our case

In an interview with ABC news, does ex-President Clinton say the solution to global AIDS is more research? No, he reiterates our position and the position of President Bush on the need for more prevention education, providing the existing drugs and organizing health networks to distribute these remedies.

 

The States continue great success against HIV/AIDS

 Kentucky98 percent, Minnesota 90%, Oklahoma 97%, Alaska 97%, Connecticut91%, Hawaii93%, Pennsylvania 95%, W. Virginia 92%, Illinois 89%,  and so on throughout the USA reflecting the excellent success of HIV drugs, prevention education and harm reduction policies (providing clean syringes to IV drug users). Click the map to see all states and their progress.
 

FAIR names Jerry Jackson Director of Information
Services for New Organ-Donor Policy Advocacy

Liver transplant recipient, Jerry Jackson, of Malibu, CA has been named FAIR's Director of Information Services for New Organ-Donor Policies. Prior to retiring, Jerry was Executive Vice President/Legislative Advocate regarding local issues for the Santa Monica, CA Chamber of Commerce, the Executive Director/Legislative Advocate in cities state-wide and Sacramento for The Sign Users Council of California and the Executive Director/Legislative Advocate in Sacramento for the California State Electronics Association (representing world-wide manufacturers of electronic equipment.) Click on Jerry to view his powerful organ-donor video.

FAIR's Press Release: Immediate Action Needed to Reverse America's Organ-Donor Crisis

With one person dying every 82 minutes and almost 100,000 sick patients waiting for the "Gift of Life," you can help by simply copying this opinion editorial and sending it to your local or national media favorites and to your Congresspersons and President Bush. Click on the Please Help logo!

FAIR to Riverside, CA reporter, "use the word 'crisis'"
and finish OPO Vice President's sentence fully

In the Press Enterprise's article on liver transplants being given to Japanese criminals, the Vice President of Communications for the largest organ procurement organization in the USA, Bryan Stewart, said "The system works." In our CEO's email, Dr. Darling asked the reporter and his associates to start regularly using the adjective "crisis" in any story on organ donation and pointed out that Bryan's sentence was cut short. It should have read, The system works, but "the truth is that our country’s organ-donor policies of 'altruism' and organ-donor Collaboratives are failing miserably in meeting the demand for organs.”

New Jersey mandates organ donation choice

A New Jersey Senate committee voted to require people applying for driver's licenses and identification cards to state whether they want to be an organ donor. The measure would also require high schools to teach about organ donation. New Jersey would be the first state to impose such requirements. Our thanks to FAIR member Deb Lynch for bringing this news to our attention. Click on the organs to read the full article.

Waiting for a Liver Transplant?

Are you waiting for a liver transplant?  Which areas/hospitals are transplanting years sooner than others. To calculate your MELD score and find the region/state that is transplanting at the lowest MELD score, click the liver.
 

Illegal Immigration debate hits liver transplant patients

Ana Puente is an illegal immigrant requesting her fourth liver transplant in this country at US taxpayer expense. Ana states, ""It doesn't matter if I'm undocumented.....They should take care of me at UCLA for the rest of my life because I've been there since I was a baby." Some citizens with hepatitis C are being denied re-transplant due to the possibility of recurrent infection, and older renal patients are being refused kidney transplant in favor of younger sufferers. The FAIR Foundation liver disease support group has had one member die, on average, every three months for seven years while waiting for a new liver. Is it ethical to transplant and/or re-transplant those here illegally while one legal citizen in need of a transplant dies every 82 minutes waiting for an organ in the USA? 

A new Mexico website for those on the waiting list:
adopt a child, take its kidney. Fact or fiction?

Is this really possible that a person in need of an kidney or part of a liver can adopt a child and the site will guaranty a match, thus enabling you to take the child's kidney or liver lobe? No, please note that as reported by snopes.com, this website is a scam.

On the other hand...

Just when efforts like the web site above test our concept of humanity, we are presented with another story to enrich our faith in mankind, well, womankind would be more appropriate. In our first-ever report that is not associated with our mission statements, we bring you this uplifting story--kudos to these two ladies!

The HIV/AIDS Clinical Trials Parade Continues

In May there were 1,742 HIV/AIDS Clinical Trials, in August, 1,865, in October 2,233, As of 6/3/08 there are 3,538. Find out how many for your disease by clicking here. For example, there are a total of only 605 for COPD, 571 for hepatitis C (many involving HIV & HCV) and for our Focus Diseases of the Month: 489 for Alzheimer's Disease.

FAIR Members' Soapbox Alerts continue

...this month to those suffering from Alzheimer's disease. To easily send an alert today to President Bush, VP Cheney, your Senators and Representatives in support of fairer funding for this illness, click the Soapbox logo!


To those with HCV, cancer, multiple sclerosis,
rheumatoid arthritis and anemia...

Avalere Health today reminded consumers to pay close attention to all aspects of their Medicare prescription drug plan, including on which “tier” or group their medications are covered. The Avalere President states that “People with cancer, multiple sclerosis, hepatitis C, rheumatoid arthritis, and anemia should be paying very close attention to tiering in Medicare." Full story.

New Treatment for Hepatitis C?

Researchers at the University of Oklahoma Health Sciences Center have found a new use for an old drug, Fluvastatin, which significantly lowered the viral load, or levels of hepatitis C virus, for up to six weeks when used alone. Full story here.

Focus Disease of the Month: 
Alzheimer's Disease

  • Alzheimer's is fatal: 71,696 died of Alzheimer's Disease in 2007. It is the seventy leading cause of death and six times the number reported for HIV/AIDS.

  • Alzheimer's is serious: there is no medical treatment to cure or completely stop the progression of Alzheimer’s disease. Three medications can temporarily mask the symptoms.
     

  • Alzheimer's Cost to Society: the direct and indirect costs of Alzheimer's and other dementias to Medicare, Medicaid and businesses amount to more than $148 billion each year. More than 7 out of 10 patients live at home because neither Medicare nor most private insurance plans cover long-term care.
     

  • Alzheimer's is Prevalent: There are 5.2 million Americans with Alzheimer's Disease as compared to the CDC's estimate of one million with HIV/AIDS.  10 million baby boomers will develop Alzheimer's in their lifetime and every 71 seconds, someone develops Alzheimer’s. As many as 10 percent of the people age 65 and older have Alzheimer's Disease, and nearly 50 percent of those over 85 percent have it. Some in their 30's and 40's also get Alzheimer's.
     

  • Alzheimer's caregivers & cost: Studies on the Economic Value of Informal Caregiving in the U.S.,” indicates $196 billion a year is contributed to the U.S. health care system by an invisible health care sector — families and friends who provide care at home for the chronically ill. Alzheimer's caregiving is estimated to make up one-third of the total informal caregiving value or 68 Billion Dollars.
     

  • Alzheimer's Can Be Inherited: Having a parent or sibling with the disease increases an individual's chances of developing Alzheimer's.
     

  • Fairness? The NIH is spending only $124 on each patient with Alzheimer's  in research in 2009 versus $3,052 on each patient who has been identified as having AIDS
     

  • Alzheimer's and all other diseases except HIV/AIDS would receive larger research allocations under the FAIR Foundation's recommended policies.

    Alzheimer's statistics from the Alzheimer's Association and in addition, their comprehensive 2008 facts and figures report which includes a state-by-state breakout of facts.

The FAIR Foundation is growing fast, but we need more members to change Congress and the NIH. Please help us by forwarding this Newsletter on to your associates and friends. With strength in numbers, we WILL achieve fair and equitable NIH distributions for Alzheimer's disease and ALL non-AIDS diseases. Member sign-up information is confidential.  

 donate...

As you consider your year-end tax-deductible donations, we would be most grateful for your financial support. Please help us benefit all who need fair and equitable research allocations for their disease of interest and to achieve new organ-donor policies to reverse the organ-donor crisis in America. Indeed, we are the only nonprofit organization solely dedicated to fairness in research funding and we respectfully ask for your help in funding our effort. Remember, we have no paid employees. Indeed; we are all volunteers so every dollar of your donation will go to continuing our educating Congress and the NIH on the need for change to insure fair funding for your disease of interest. Thank you in advance for your generosity!  

Please make your donation on our secure website or mail a check made out to the FAIR Foundation at 78-629 Bougainvillea Drive, Palm Desert, CA 92211.

The FAIR Foundation; E-mail us at fair@dc.rr.com

FAIR Mission Statement: The FAIR Foundation is dedicated to fair and equitable distribution of research funds by the government for all diseases, including the 16 that kill a million more Americans than AIDS. A disease’s mortality rate shall be given emphasis in determining allocations and other secondary factors shall be utilized to insure diseases that cause great suffering but have low mortality rates will also receive significantly increased funding.


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